Sam Nayler is one of our devoted A-T researchers who works with Professor Ernst Wolvetang and his team at the AIBN at the University of Queensland. You can listen to his recent (11 Nov 2016) interview on Stem Cell Research on Radio 4EB here:
BrAshA-T was founded in 2007 by a Brisbane (Australia) family after two of their young children, Brady and Ashleigh, were diagnosed with A-T (Ataxia-telangiectasia pronounced ay-TACK-see-uh Tey-LAN-jick-TAY-sha).
Determined to do something about their situation, parents Sean and Krissy created the organisation called BrAshA-T to raise money to support research into finding a cure and as a means for creating a support network for other families dealing with A-T.
Research - fund medical research into the causes, prevention and treatment of A-T
Awareness - engage in activities to raise community awareness of A-T
Support - provide emotional support and limited financial assistance for sufferers of A-T
Fundraising - engage in fundraising activities to make it possible to fulfil Our Mission
Our Achievements So Far
Since getting up and running in late 2007, we are starting to bear the fruits of our efforts with considerable progress towards achieving our long-term goals:
Created a support network for families around Australia affected by A-T who are now in contact with each other as well as the foundation.
Established a National A-T Clinic, supported by the Queensland State Government, UQCCR and The Lady Cilento Children's Hospital, which provides a team of expert doctors who will see every child in Australia diagnosed with A-T.
Specialist doctors will be in attendance from Neurology, Immunology, Respiratory, Oncology, Genetics and Psychology along with a Pediatrician on board to oversee general care. Also available will be therapists from Allied Health - speech, OT & physio. These clinics take place two to three times a year.
Committed ongoing funding towards an allowance program to enable A-T families to attend the National A-T Clinic.
Committed ongoing funding to support a team of researchers from UQCCR (University Queensland Centre for Clinical Research) led by Professor Martin Lavin.
Committed ongoing funding to support a team of researchers from AIBN (Australian Institute for Bioengineering and Nanotechnology) led by Professor Ernst Wolvetang.
Funded researchers to attend Scientific Research Meetings at ATW2008 in Shiga (Japan), ATW2010 in Los Angeles, ATW2012 in New Delhi and ATW2015 in Beijing.
Funded researchers to attend the A-T Clinical Conference in the Netherlands in 2014 and Warsaw in 2016.
Raised significant funds through holding events such as Charity Dinners, Movie Nights, Golf Days, Membership Drives, Merchandise Sales, etc.
Operated the foundation on 100% volunteer effort thereby ensuring maximum funds are directed to finding a cure for A-T.
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Stay up-to-date with upcoming fundraisers, clinics and advances in A-T Research.