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It's Time to Shelve the Shaver and Grow a Beard!
Winter is here which means it's time for the Annual Beard Up Boys fundraiser.
Register to grow a beard throughout winter (June - August) and ask family, friends and colleagues to generously sponsor you for a great cause.
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A-T Global Grant Round
As founding members of the Global A-T Alliance, we've once again teamed-up with Action for A-T (UK) to provide funding to the global A-T research community through a joint grant round.
Projects are up to 3 years in duration with a maximum value of $450,000 from an overall funding pool of approximately $2.4M.
Applications closed just prior to Christmas 2023 with 13 promising applications making the shortlist. These underwent a rigorous review process in April with the successful applicants to be announced in mid-2024.
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Commencement of Triheptanoin Open Label Phase
The analysis of the Triheptanoin Phase 2 Trial was published at the end of 2023 highlighting that patients demonstrated statistically and clinically meaningful improvements.
This has paved the way for the next step of the trial, the Open Label Phase which commenced in February 2024 (restricted to Australian patients).
During this 12-month phase, patients will continue the use of triheptanoin without placebo. This will also lay the groundwork for an international Phase 3 Trial subsequent to the Open Label Phase. Read more